Muscular Dystrophy vs Atrophy

Jesy Nelson, Spinal Muscular Atrophy

Jesy Nelson Reveals Twins' Rare Diagnosis—What Parents Need To Know About Spinal Muscular Atrophy

British singer Jesy Nelson recently took to Instagram to share a devastating update about her 8-month-old twin daughters.

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Wes Streeting supports Jesy Nelson’s call for improved spinal muscular atrophy screenings

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Jesy Nelson reveals her twins may never walk, but what is spinal muscular atrophy?

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Jesy Nelson ‘right to challenge’ twins’ diagnosis process, says Streeting

The Health Secretary has said Jesy Nelson was “right” to challenge the screening process for spinal muscular atrophy (SMA) after her twins were diagnosed with the rare genetic condition.

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Jesy Nelson will 'shout from the rooftops' about baby muscle disease campaign

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Jesy Nelson shares update from hospital as she reveals she is fighting for SMA1 screening at birth after her twins' diagnosis because early treatment helps to prevent severe muscular disease

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Jesy Nelson Says She Noticed “Signs” Before Her Twins’ SMA Diagnosis

“I actually saw all of the signs before I knew what SMA was,” Jesy, 34, said during her Jan. 6 appearance on UK's This Morning.

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Jesy Nelson shares first warning signs she noticed that her babies may never walk

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Watch: Jesy Nelson breaks down over 'frustrating' reality of twin babies' life-changing SMA diagnosis

Medical Xpress

What you should know about spinal muscular atrophy

Spinal muscular atrophy (SMA) is a genetic neuromuscular disease affecting specialized nerve cells that control voluntary muscle movement, according to the Muscular Dystrophy Association (MDA). It can lead to severe physical disability, paralysis and life ...

Staten Island Advance

Understanding Spinal Muscular Atrophy: Help little Aubrey

STATEN ISLAND, N.Y. -- Three-year-old Aubrey Paige Ibrahim is a beautiful little girl fighting a battle most adults would find challenging, if not impossible. Born on May 31, 2013, Aubrey was diagnosed on December 2013 with Spinal Muscular Atrophy (SMA ...

Mena FN

Muscular Dystrophy Association Calls FDA Approval Of Novartis' Itvisma (Onasemnogene Abeparvovec-Brve) A Major Step Forward For The Spinal Muscular Atrophy Community

(MENAFN- GlobeNewsWire - Nasdaq) The only gene replacement therapy for children two years and older, teens, and adults with spinal muscular atrophy (SMA). New York, Nov. 24, 2025 (GLOBE NEWSWIRE) -- The Muscular Dystrophy Association (MDA) today called the ...